A Mother's Words

From my journal:
Brian has the most wonderful friends. They hold his hands, play his music, make silly inside jokes, tell him how great he looks. Next to me, Dave and Marshall, they are the most important people in his life. The hospital staff allegedly want to limit their influence/presence severely. Marshall (says things) about parents being more nurturing. I am going to try to get to the bottom of this, once and for all. I am tired of this being a source of conflict. Another bit of nonsense is "confusion". What's confusing for Brian is being in the hospital, surrounded by starangers and machines, instead of his peers. A different nurse every night. A different nurse at night than in the day. Being prodded, poked and turned. Those things are confusing.
This has been a problem from the first week: Threats vs compromise. Everyone telling ME what's best for my son, and NO ONE listening to me. Maybe tomorrow I can settle some of it, by talking to the social worker.
12:56 am   Friday  10-26-01